Monster             
 


Jul 13 2007, 9:18 pm / Angry

Alright, I'm more than a bit frustrated.

It started ever since I was 2 days old, sleeping 12 hours a day. Then when I'm 17 I get this head/heart condition, Neurocardiogenic Syncope. Or also called chronic vasovagal. Thats where i can't stand for more than 15 minutes, or my heart stops and I faint. If I put my hands over my head and stand it can take 7 minutes to faint. And then at age 18 I get this sleeping problem, having to sleep 12 hours a night but then during the day, at any time, I will suddenly and unexpectedly fall asleep. When I do that I usually have to sleep for two hours. When I wake up I feel just as energized as I felt before I fell asleep. If I don't get to sleep, or if someone wakes up during my sleep I get syncope, dissociation, shakiness, weakness, especially in legs, and very very lethargic.

I've seen a Resperatory Therapist (my Asthma is doing pretty good), a Cardiologist (skipped beats and some irregularities, but thats pretty normal they say) and a Neurologist (who diagnosed me with Vertigo). Ive had MRI's, EEG's, ENG's, Echo Cardiogram, X-Rays, and countless blood and urine tets. Not to mention the few hundred primary care visits.

It's a mystery to what happens to me. Everything comes back normal. I think some doctors think Im faking it. But it's quite obvious when I fall asleep at the wheel.

The most annoying part, aside of asshole doctors who think im faking it and not being able to diagnose, when they learn I'm mentally ill they chalk it all up to anxiety, and medications. That really urks me.

In fact, it all urks me. The only diagnosis they came up with is MS, and my MRI always comes back normal. So they veto'ed that idea. I'm starting to get tired of all this. Ha! Tired Undecided